Under the Surface

Check out what’s going on in the SHARx blog, Under the Surface.

Facing the System Head-On

FACING THE SYSTEM HEAD-ON A Broken Drug Industry I’ve spoken many times about my children’s genetic condition known as Cystinosis. Having children with an illness is stressful enough, but it is made more stressful by the cost of the medication needed to treat their illness. A few years ago, the manufacturer of their medication was

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